People with long Covid have repeatedly told us they want research to understand what is happening in their body, and to help them decide when to prioritise rest, and when to try to resume activities that were part of their normal pre-Covid life.
We are carrying out research studies involving people with long Covid to describe how symptoms vary. We are using a diary app with reaction time tests, and sensors for activity and heart rate, to build up detailed daily patterns of symptoms. We can then study the relationship between activity and symptoms, with the aim of helping people manage their symptoms whilst trying to recover.
We have been working with long Covid patients since June, and people with long Covid are a core part of our research team. We are committed to ensuring our research is relevant to all, regardless of ethnicity or income. We will ensure that our findings are shared widely and our studies will focus on making a difference for patients.